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Hyperacusis Central is comprised of a rotating collective of sufferers bound together by a desire to bring awareness to our condition. Increasing awareness is requisite for prevention, accurate diagnosis, patient education and garnering donations to fund medical research.    In order to accomplish our mission, we need all the assistance we can get from those within our community. One of the best ways to support the cause is by sharing your story on our platform.    The more sufferers we have speaking out, the better! It boosts our likelihood of reaching a wider audience, makes people realize this affliction affects individuals from all walks of life, and also helps them truly understand the degree to which hyperacusis impacts every facet of daily living.    We encourage you to tell your story however you see fit. Below are some general guideline suggestions to consider when composing your story:  Explain what you think caused your hyperacusis.  Explain how it affects your hearing.  If
Recent posts

When Life Succumbs to Tragedy

When Life Succumbs to Tragedy       No one would believe it: a world where every sound hurts, every day belongs to pain, and every dream becomes translucent, out of reach and dead. Like the flames of time extinguished, they lose their shine and burn no more, fading in a plume of smoke. It sounds absurd, this world. It reeks of lies and tales, but it’s all too true, I’m afraid, all too real for its inhabitants. They suffer and they suffer big. Some suffered and lost the fight, like Dietrich Hectors, a victim of this rare condition, hyperacusis.    He was only 29 years old when he took his life, a young man eager to live but beset by tragedy. His hopes, goals, hobbies, passions… all wiped out by this condition. He suffered most from a subset of hyperacusis, known as noxacusis, where a decreased tolerance to sound induces pain, and what it does to a person’s life redefines the limits of horror. He faced a hellish landscape beyond recognition, a land so foreign that it crushed his soul and

Farewell Letter from Dietrich Hectors

     Farewell letter from Dietrich Hectors  Trigger warning: suicide       Dietrich Hectors, a 29-year-old young man from Essen, retired from life in July 2009 because he suffered unbearably from his tinnitus and hyperacusis. He posted his farewell letter on his Facebook profile to draw attention to the issue of noise and hearing damage.    June 15, 2009    I feel incredibly bad...  It's hard for me to describe what I feel, hard in the sense of hard to understand. But I am going to try to explain it anyway.    I really don't feel like living at the moment. I am 29 years old and I should be in the prime of my life. But I have an incurable ailment called tinnitus and hyperacusis, which controls my whole life. Tinnitus means hearing sound that is not there; hyperacusis means hypersensitivity to noise. But the ailment encompasses even more things than these two. The medical aspect will be discussed later; for the moment I am going to limit myself to a description of the symptoms. 

Kiko's Hyperacusis Story

Kiko’s Hyperacusis Story      I first experienced Tinnitus about twenty years ago, after being a drummer in a band. Fortunately, it went away after two years.    My current journey with Tinnitus and Hyperacusis started on June 6, 2020, one hour after taking benzodiazepines, trazodone and postoperative painkillers. This led to brutal tinnitus and a crackling sound like crickets in my right ear. Even the rubbing of the pillow caused ringing in my ear.    On an online forum for people taking benzodiazepines, there are hundreds of people reporting the same problems after prolonged benzodiazepine use. I asked my psychologist at the time, who told me that her partner was an ''expert'' on tinnitus. She didn't give it any importance and told me that it usually went away as it came. But I knew it was not normal because of my previous horrible two year experience with tinnitus, and this time it was worse. It sounded like a broken speaker; distorting the sound with cracklin

Setbacks: what they are and how hyperacusis patients deal with them

  SETBACKS: what they are and how hyperacusis patients deal with them     For hyperacusis patients, a setback is described as a temporary worsening of symptoms in  response to certain loud sounds 1 . In a 2019 survey, 43% of hyperacusis patients claimed that they needed weeks to months to  recover from this increased sensitivity, while only 29% of patients reported that their clinician  addressed this topic. 14% of the respondents even said they never fully recovered from a  setback. Most respondents avoid loud sounds or wear hearing protection to prevent setbacks  from occurring. A comparative study between pain and loudness hyperacusis patients concludes that patients  with pain report more frequent and more severe setbacks than those with loudness  hyperacusis. 2 In this blog post, we will explore how two hyperacusis patients experience setbacks, how they  manage the setback and what they do to improve their symptoms.    Shay’s experience with setbacks I’ve had hyperacusis for 5 yea